The Flog – The Fabry Log

Many of you have been praying for a little girl named Ellie. Here's an encouraging update on her condition, received yesterday, 10/17. Thanks for continuing to remember Ellie and her family in your prayers.

Hello friends,

Wanted to give everyone a quick update on Ellie. She's making progress, slowly returning to her normal self (or how she was before the surgery). We transferred from ICU to the sixth floor last Tuesday.

She's moving her left side with same mobility as before the surgery, which is great. It's the side most effected by the disconnection of her right brain. Her head and faced swelled tremendously following surgery, (giving her a black eye) but it's gone down enough for her to open both of her eyes. Most of the week, she's seemed to be in pain (she rarely cries, but just acts agitated) and that seems to be improving as she's started to smile a little and play with her blanket and favorite bear. She was sleeping almost non-stop and was generally lethargic, but that's started to improve.

We may soon be discharged! However, there are a few issues that she's still dealing with that may affect when we'll be able to go.

Ellie wouldn't be as far along without everyone's prayers. Thank you so much, all of you, and a special thanks to those who've organized the prayer schedules. You've been incredible!

Peter with Alana, Katie, and Ellie